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Read the full storyExa-Cel (Casgevy) Gene Therapy Update
The National Institute for Health and Care Excellence (NICE) announced their draft decision to reject the CRISPR gene therapy, Exa-cel, as a treatment for sickle cell disorder. Exa-cel, also known…
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Read the full story'What's the worst that could happen?': Love in the sickle cell capital of the world
The prevalence of sickle cell disease is changing how Nigerians date, marry and plan their lives. And as genetic testing becomes more common, prospective parents across the world will face similar…
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Read the full storyAre You Moving Up to Adult Sickle Care
Calling young people with sickle cell & parents! Are you transitioning from paediatric to adult services? Share your experiences with us in London next week! Email communications@sicklecellsociety.
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Read the full storyImperial's Sickle Cell Research Group welcomes Sickle Cell Warriors
Researchers at Imperial hosted a visit for children living with Sickle Cell to tour Hammersmith Campus. The Imperial Sickle Cell Research Group within the Department of Immunology and Inflammation…
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Read the full storyPatients with blood disorders to get world-first NHS test
Sickle cell patient gets world-first NHS test A patient with sickle cell disorder says she is optimistic for the future after a new genetic test was launched. Stephanie George, 32, from London, was…
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Read the full storyStandards of the Clinical Care of the treatment of Children and Adults living with Thalassaemia in the UK
We are thrilled to announce the online publication of the much-anticipated "4th Edition of the Standards of the Clinical Care of the treatment of Children and Adults living with Thalassaemia in the…
