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Appropriateness in Access to Automated Red Blood Cell Exchange: Discussion forum for patients and clinicians to help improve access to care.
The Sickle Cell Society and the Haemoglobinopathy Coordination Centres (HCC’s) have recently distributed a survey to sickle cell patients to ask for views on the provision of Automated Red Blood…
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Health Improves After Stem Cell Transplant, But Challenges Remain
Red blood cells are shown in a graphic. People with sickle cell disease (SCD) may see their physical, mental, and social health get better after a stem cell transplant, and this may help them pursue…
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Two-thirds of Londoners who signed up to give blood have not yet donated, new figures show
Two-thirds of people in London who have signed up to give blood have not yet donated, new figures show. NHS Blood and Transplant is urging some 235,000 potential donors who registered as donors…
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Cost of Living Crisis
The condition, which affects red blood cells, means people must keep warm to avoid painful flare-ups which can often lead to a hospital stay. One Birmingham family said they were staying in bed to…
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"Hidden condition made me feel like I was on fire. Now I feel like I have wings"
"At times it feels as though you’d rather it all ended because you can’t endure the pain" A woman was suffering a hidden condition was so painful she once thought it might end her life. Diagnosed at…
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Cost of Living Crisis
The condition, which affects red blood cells, means people must keep warm to avoid painful flare-ups which can often lead to a hospital stay. One Birmingham family said they were staying in bed to…