Our mission is to support and oversee the safe, effective delivery of care for individuals living with sickle cell disease (SCD) and thalassaemia across West London.
As inherited blood disorders primarily affecting Black and minority ethnic populations, these conditions often require lifelong specialist care. Our goal is to promote clinical excellence, improve patient outcomes, and enhance the care experience by working closely with networks, specialist teams, and local healthcare providers. Through collaboration, we ensure clear care pathways and access to expert support.
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LEVEL UP! - Youth Co-Creation Day
Join us for LEVEL UP! A dynamic youth-focused event hosted by Sickle Cell Society in collaboration with the NHS Race and Health Observatory. This one-day gathering is designed for young people aged 12–24 living with sickle cell, as well as their…
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Understanding the key features of sickle cell disease and beta thalassaemia
Sickle cell disease (SCD) and beta thalassaemia belong to a group of inherited conditions known as haemoglobinopathies, where the haemoglobin in red blood cells (RBCs) is affected by a genetic alteration in the globin genes. This results in an…
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Transforming Care and Strengthening Communities
Amid the vibrant energy of West London, World Sickle Cell Day brought together diverse communities in a powerful show of solidarity, education, and celebration. The day highlighted the resilience of those affected by sickle cell and red blood cell…