Patient hub
Welcome to the Patient Hub, your dedicated resource for information, support, and guidance tailored for individuals living with Sickle Cell Anaemia and related conditions.
This hub offers a range of helpful resources to support your journey, from practical tools in our Patient Resources section and essential advice in the Citizens Advice Bureau guidance to community aid information through West London Food Banks. Gain insight from others’ journeys in Personal Experiences and Patient Voices for Sickle Cell Anaemia, discover tips for safe travel in our Travel Guides, and explore ways to save on medications through the Prescription Savings Campaign. For more support, our Useful Links provide easy access to additional trusted resources. Dive in to find guidance, inspiration, and community.
Essential resources and patient support
Health and wellbeing resources
In-depth information on treatments, pain management, sexual health, Covid-19, and travel guidance.
Citizens Advice guidance
Advice for patients within the West London Haemoglobinopathy region.
Accessing benefits
Discover the benefits and support offered by the UK government and local councils for individuals affected by Sickle Cell, Thalassaemia, and rare anaemias.
Personal experiences
Explore videos featuring people from around the world as they share their journeys and insights on managing life with a red blood cell disorder.
Travel guides
Essential advice to help you prepare and ensure your travel plans go smoothly.
Prescription savings campaign
Find out about the prescription money saving schemes available to patients: the Prescription Prepayment Certificate and the Low Income Scheme.
Useful links
Links to support networks, information, and activities related to Sickle Cell and Thalassaemia.
Mental Health Resources
Mental health challenges are often a hidden aspect of living with sickle cell disease (SCD), affecting a large portion of the community.
The Sickle Cell Children and Young Persons Peer Mentoring Programme
The Mentoring Scheme is for people living with sickle cell aged 10-24 . Sign up for FREE support and advice in our one-to-one mentoring sessions led by peer mentors , all of whom have sickle cell themselves.
Work Well West London Alliance
The West London Alliance (WLA) is a public sector partnership between seven West London local authorities of Barnet, Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon and Hounslow.
Related news and updates
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Read the full storySickle Cell Disease: What Every Clinician Needs to Think About
The many faces of a sickle cell crisis A sickle cell crisis does not introduce itself politely. Sometimes it shows up as excruciating pain. Sometimes as yellowing eyes from jaundice. Sometimes as an unexpected mass in the left side of the abdomen,…
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Read the full storyTell Us About Your Experience of Applying for PIP (Personal Independence Payment)
We Want to Hear From You! The Sickle Cell Society is running a research project about patients’ experiences with the welfare system. If you have applied for Personal Independence Payment (PIP) because of the impact of sickle cell disorder on your…
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Read the full storyLiving Well with Sickle Cell: Engagement Education and Empowerment
You are invited to the Living Well with Sickle Cell community event to explore everyday wellness for individuals and families affected by sickle cell. This event is an opportunity to learn more about sickle cell research, make connections, and use…
