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West London Haemoglobinopathy Coordinating Centre
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  • News and updates
    • Story 1
    • Milestones Life Journeys with Sickle Cell
    • World Sickle Cell Day at Hammersmith Hospital
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    • The Invisible Warrior project will be back at the Great Exhibition Road Festival
    • THE NHS NEEDS ONE MILLION BLOOD DONORS TO SAVE LIVES
    • St Georges Red Cell Celebration Day
    • Sickle Cell Disease PPIE Activities
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    • UKFHD 59th Academic Meeting Wednesday 7th May 2025 Hybrid Event Registration Now Open
    • ACLT WEBINAR New Sickle Cell Gene Editing Therapy QA
    • Sickle Cell Disease Research A Day of Learning Art and Empowerment
    • Childrens Academic and Health Results for Sickle Cell Disease in England
    • West London HCC Education Day
    • Managing Nutrition in Sickle Cell Disorder
    • Genomics England drives Sickle Cell research through the Diverse Data Initiative
    • Revolutionary gene editing therapy for sickle cell offers hope of a cure for NHS patients
    • Improving Black Health Outcomes Education Events
    • The Sickle Cell Children and Young Persons Peer Mentoring Programme
    • Gates Foundation to invest in Tessera SCD gene editing treatment
    • West London HCC Training Day
    • Sickle Cell Alliance Formed to Accelerate Innovation and Investment in Research
    • Ciannas Smile Youth Entrepreneur Club
    • Do You Have Sickle Cell and Have Regular Pain Crisis or Blood Transfusions
    • Are you between 10 and 24 years old Do you have sickle cell disorder
    • Imperial Lates Senses
    • Laptops and Drinks Black History Month Special
    • Sickle Cell Disorder - The Final Frontier
    • Menopause Sessions for Thalassaemia Patients
    • Girl 13 suffered so much pain from disease she couldnt play sport or go on holiday
    • Two thirds of Londoners with sickle cell disease have a Universal Care Plan
    • Heres what we can do for National Sickle Cell Awareness Month
    • Sickle Cell Inspired Art and Poetry Exhibition
    • Sickle Cell and Genomics Research Aims
    • Gene Therapy and Its Potential For Treating Health Conditions
    • Hit Netflix Show Supacell is Raising Awareness of Sickle Cell Anaemia
    • Other ways to get involved in sickle cell research
    • Patient Voices Sickle Cell Anaemia
    • The Sickle Cell Society Podcast
    • ARIZE Conversations TalkShow Series
    • Sickle Cell Awareness Day at Hammersmith Hospital
    • Sickle Cell and Genomics Workshop
    • Sickle Cell Society SA SCS
    • Invisible Warrior at The Great Exhibition Road Festival 2024
    • Improved deal signals NICE recommendation of sickle cell treatment voxelotor
    • Community Coffee Morning pilot across 5 boroughs in SW London
    • Akanji The Studio Creatively Raising Awareness On Sickle Cell Through Beautiful AI Art
    • Sickle Cell Family Retreat 2024
    • ExaCel Casgevy Gene Therapy Update
    • Are You Moving Up to Adult Sickle Care
    • Come Save Lives With Us
    • Whats the worst that could happen Love in the sickle cell capital of the world
    • Imperials Sickle Cell Research Group welcomes Sickle Cell Warriors
    • Imperial Lates Romance Reproduction The Inheritance of Sickle Cell
    • Crizanlizumab Update
    • Patients with blood disorders to get world first NHS test
    • HCC Education Session Cardiac failure in Sickle Cell disease
    • HCC Education Session Lab Results and Newborn Screening
    • Standards of the Clinical Care of the treatment of Children
    • Whats a blood type Why is it important for transfusion
    • Patient Voices for Social Prescribing
    • Tackling the Enemy of Cold Weather with Sickle Cell Disease
    • Coping with Parental Guilt in Sickle Cell Disease Management
    • Read 2023 Sickle Cell Nursing Care Report The Between Life and Death
    • Prescription Savings Campaign
    • UK Medicines Regulator Approves World first Gene editing Treatment for Blood Disorders
    • Science to Health in Haematology on a Global Scale
    • Are You a Sickle Warrior
    • Exclusive Trust listening to sickle cell patients to drive improvements
    • Patient Public Voice Group Bone Marrow Transplant Talk
    • Acute pain management in sickle cell disease update national pain group
    • Sickle Cell and The Workplace Policy and Procedures Know Your Rights
    • Research in Red Cell Disorders Information Talk
    • Im the UKs first sickle cell specialist nurse this is how I fought for better care
    • Patient Public Voice Group Away Day
    • How I find the silver lining while living with sickle cell disease
    • Simulation Training
    • Education Session Short clips
    • National Education Session on Acute Complications in SCD
    • National Education Session on Thalassaemia Nursing Focus Group
    • New Black Film Collective
    • Peer Mentoring Scheme Positions
    • Red Cell Condition Support Group
    • Education Session Sickle Cell for School Nurses and Teachers
    • Education Session on Key Findings from the Fatigue in Sickle Cell Disease
    • Building Trust Project
    • Red Cell Celebration Day
    • Invisible Warrior Design For Sickle Cell at the Great Exhibition Road Festival
    • HCC Teaching session Antenatal Screening of Haemoglobinopathies
    • Gene Therapy for SCD in Africa and the activities by the Global Gene Therapy Initiative
    • Sickle Cell Education Series Episode 3
    • Appropriateness in Access to Automated Red Blood Cell Exchange
    • Health Improves After Stem Cell Transplant But Challenges Remain
    • Two thirds of Londoners who signed up to give blood
    • The Cost of Living Crisis
    • Transition Workshops
    • The Sickle Cell Series
    • Hidden condition made me feel like I was on fire Now I feel like I have wings
    • HCC Education session Cerebrovascular function in paediatric Sickle Cell patients
    • Invisible Warrior at the Imperial Lates Drug Experiments
    • Cost of Living Crisis
    • Human Centred Design Research
    • Preparing for the Holiday Season and End of Year Reflections
    • Back to Basics Understanding Anaemia
    • How Breakthrough Treatment Has Changed The Lives of Sickle Cell Patients
    • Invisible Warrior Workshop How I Reduced My Pain Medication With the Support of My Psychologist
    • West London HCC Survey
    • Helping Sickle Cell Patients With the Cost of Heating
    • Invisible Warrior SCD at the Imperial Lates
    • Statement Regarding Blood Shortages in England
    • Sickle Cell Society Charity of the Month
    • A Proclamation on National Sickle Cell Awareness Month 2022
    • Sickle Cell and PhD
    • HCC Education Session Paediatric Nursing Sickle Cell in Emergency Departments
    • Invisible Warrior Workshop the history of vaccines
    • Education session pregnancy in sickle cell
    • Insider Magazine article
    • UK Heatwave Guidance
    • Sickle Cell and Thalassemia APPG holds Annual General Meeting in Parliament
    • Sickle cell I want patients to know there is hope
    • Did you catch St Georges Hospital colleagues on the news this week
    • Story 2
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    • Story 23
    • Story 24
    • Story 26
    • Hello sunshine hello summer and hello all things sickle cell
    • New on Rare Disease Advisor SCD
    • Do you or anyone you live with have Sickle Cell
    • Blood transfusions gave me an extra 24 hours with my dying mum now I give blood in her memory
    • Can You Tell Its Sickle Cell
    • Patient Sickle Cell Awareness Day 2022
    • Great Exhibition Road Festival
  • Events
    • 63rd ASH Annual Meeting and Exposition
    • Acute pain management in sickle cell disease update national pain group
    • Ageing Well With Sickle Cell Launch Event
    • AHSC Event
    • Akanji Studio Exhibition Creating beyond Sickle Cell
    • Amplify Sickle Cell Voices International
    • Animal Workshop
    • Awareness Workshops for World Sickle Cell Day
    • Break The Stigma Event
    • Building Trust Project
    • Ciannas Smile Youth Entrepreneur Club
    • Dragons Den Workshop
    • Give Blood Spread Love
    • Global Alliance of Sickle Cell Disease Organizations
    • Great Exhibition Road Festival
    • Guest panel event on Sickle Cell Awareness featuring Supacell Co Producer
    • Haematology Patient and Carers Congress
    • HCC Education session Dentistry for Sickle Cell patients
    • HCC Education session Ophthalmology and Sickle Cell
    • HCC Education session Paediatric Nursing Sickle Cell in Emergency Departments
    • HCC Education session Paediatric Nursing Sickle Cell in Emergency Departments
    • HCC Education session - Renal Function and Sickle Cell
    • HCC Education Session Autologous Gene Therapy Update in Sickle Cell Disease
    • HCC Education Session Cardiac failure in Sickle Cell disease
    • HCC Education session Cerebrovascular function in paediatric Sickle Cell patients
    • HCC Education session Dentistry for Sickle Cell patients
    • HCC Education Session Fatigue in Sickle Cell Disease
    • HCC Education Session Lab Results and Newborn Screening
    • HCC Education Session Sickle Cell for School Nurses and Teachers
    • HCC Teaching session Antenatal Screening of Haemoglobinopathies
    • Imperial Lates Drug Experiments
    • Imperial Lates Romance and Reproduction
    • Inaugural Lecture of Professor Paul Telfer
    • Invisible Warrior at the Imperial Lates
    • Invisible Warrior Design For Sickle Cell at the Great Exhibition Road Festival
    • Invisible Warrior SCD at the Imperial Lates Get to know your red blood cells
    • Invisible Warrior Workshop
    • Invisible Warrior Workshop 1
    • Invisible Warrior Workshop 2
    • Invisible Warrior Workshop history of vaccines
    • Invisible Warrior Workshop How I reduced my pain medication with the support of my psychologist
    • KCH Sickle Cell Patient Support
    • Managing Nutrition in Sickle Cell Disorder Session Four
    • Managing Nutrition in Sickle Cell Disorder Session One
    • Managing Nutrition in Sickle Cell Disorder Session Three
    • Managing Nutrition in Sickle Cell Disorder Session Two
    • MDT April 2025
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    • Men Sickle Focus Group
    • Milestones Life Journeys with Sickle Cell
    • Monthly Parent Talk
    • National Education Session Management of Pregnancy in Sickle Cell Disease
    • No Ones Listening
    • Painting Workshop
    • Patient Public Voice Group Session on adult Bone Marrow Transplant
    • Patient Public Voice Group 26th sept
    • Patient Sickle Awareness Day
    • Red Cell Celebration Day
    • REDRESS Launch Event
    • REDRESS Study Launch Event
    • Research in Red Cell Disorders Information Talk
    • Research Nurses Workshop
    • Sepsis in Thalassaemia
    • Shape Survey Global Webinar
    • Sickle Cell Public Engagement Event
    • Sickle Cell and Thalassaemia Awareness Day
    • Sickle Cell and The Workplace Policy and Procedures Know Your Rights
    • Sickle Cell Awareness Day at Hammersmith Hospital
    • Sickle Cell Disease Appropriateness in Access to Automated Red Blood Cell
    • Sickle Cell Disease Research A Day of Learning Art and Empowerment
    • Sickle Cell Education Series Emergencies Part 1 Chest Crisis
    • Sickle Cell Education Series Episode 3
    • Sickle Cell Public Engagement Event
    • Sickle Cell The Invisible Disease Online Premiere
    • Sickle Warrior Sickle cell and PhD
    • SickleFES Games Night
    • St Georges Red Cell Celebration Day
    • Teaching Session Antenatal Screening of Haemoglobinopathies session 2
    • Thalassaemia A nursing Focus
    • The Great Exhibition Road Festival
    • Transition Workshops
    • UCLH Sickle Cell Day
    • UKFHD 59th Academic Meeting
    • Virtual Holiday for Children and Kids with Sickle Cell
    • WEBINAR NEW SICKLE CELL GENE EDITING THERAPY QUESTIONS ANSWERS
    • World Sickle Cell Day at Hammersmith Hospital
    • An Introduction to Sickle Cell and Thalassaemia in Adults
    • An Introduction to Sickle Cell and Thalassaemia in Children
    • ASCAT 2022
    • Blood Donation
    • British Society for Haematology Annual Meeting
    • Community Check In
    • Sickle Cell Caregiver Summit
    • Elements and Advances in Sickle Cell Care
    • Education Session
    • Family Quiz Night
    • HCC Education Session
    • HCC Education Session 2
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    • HCC Education Session 8
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    • HCC Education Session 11
    • MDT Jan 2022
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    • New Treatments in Development for Sickle Cell
    • Red Cell Condition Support Group
    • Red Cell Condition Support Group 2
    • UK FHD 51st Academic Meeting
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