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Medical Professional and Educator Resources
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Patient Hub
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Health and wellbeing resources
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News and updates
- Story 1
- Milestones Life Journeys with Sickle Cell
- World Sickle Cell Day at Hammersmith Hospital
- Guest panel event on Sickle Cell Awareness featuring Supacell Co Producer
- The Invisible Warrior project will be back at the Great Exhibition Road Festival
- THE NHS NEEDS ONE MILLION BLOOD DONORS TO SAVE LIVES
- St Georges Red Cell Celebration Day
- Sickle Cell Disease PPIE Activities
- Sickle Cell and Thalassaemia Awareness Day
- UKFHD 59th Academic Meeting Wednesday 7th May 2025 Hybrid Event Registration Now Open
- ACLT WEBINAR New Sickle Cell Gene Editing Therapy QA
- Sickle Cell Disease Research A Day of Learning Art and Empowerment
- Childrens Academic and Health Results for Sickle Cell Disease in England
- West London HCC Education Day
- Managing Nutrition in Sickle Cell Disorder
- Genomics England drives Sickle Cell research through the Diverse Data Initiative
- Revolutionary gene editing therapy for sickle cell offers hope of a cure for NHS patients
- Improving Black Health Outcomes Education Events
- The Sickle Cell Children and Young Persons Peer Mentoring Programme
- Gates Foundation to invest in Tessera SCD gene editing treatment
- West London HCC Training Day
- Sickle Cell Alliance Formed to Accelerate Innovation and Investment in Research
- Ciannas Smile Youth Entrepreneur Club
- Do You Have Sickle Cell and Have Regular Pain Crisis or Blood Transfusions
- Are you between 10 and 24 years old Do you have sickle cell disorder
- Imperial Lates Senses
- Laptops and Drinks Black History Month Special
- Sickle Cell Disorder - The Final Frontier
- Menopause Sessions for Thalassaemia Patients
- Girl 13 suffered so much pain from disease she couldnt play sport or go on holiday
- Two thirds of Londoners with sickle cell disease have a Universal Care Plan
- Heres what we can do for National Sickle Cell Awareness Month
- Sickle Cell Inspired Art and Poetry Exhibition
- Sickle Cell and Genomics Research Aims
- Gene Therapy and Its Potential For Treating Health Conditions
- Hit Netflix Show Supacell is Raising Awareness of Sickle Cell Anaemia
- Other ways to get involved in sickle cell research
- Patient Voices Sickle Cell Anaemia
- The Sickle Cell Society Podcast
- ARIZE Conversations TalkShow Series
- Sickle Cell Awareness Day at Hammersmith Hospital
- Sickle Cell and Genomics Workshop
- Sickle Cell Society SA SCS
- Invisible Warrior at The Great Exhibition Road Festival 2024
- Improved deal signals NICE recommendation of sickle cell treatment voxelotor
- Community Coffee Morning pilot across 5 boroughs in SW London
- Akanji The Studio Creatively Raising Awareness On Sickle Cell Through Beautiful AI Art
- Sickle Cell Family Retreat 2024
- ExaCel Casgevy Gene Therapy Update
- Are You Moving Up to Adult Sickle Care
- Come Save Lives With Us
- Whats the worst that could happen Love in the sickle cell capital of the world
- Imperials Sickle Cell Research Group welcomes Sickle Cell Warriors
- Imperial Lates Romance Reproduction The Inheritance of Sickle Cell
- Crizanlizumab Update
- Patients with blood disorders to get world first NHS test
- HCC Education Session Cardiac failure in Sickle Cell disease
- HCC Education Session Lab Results and Newborn Screening
- Standards of the Clinical Care of the treatment of Children
- Whats a blood type Why is it important for transfusion
- Patient Voices for Social Prescribing
- Tackling the Enemy of Cold Weather with Sickle Cell Disease
- Coping with Parental Guilt in Sickle Cell Disease Management
- Read 2023 Sickle Cell Nursing Care Report The Between Life and Death
- Prescription Savings Campaign
- UK Medicines Regulator Approves World first Gene editing Treatment for Blood Disorders
- Science to Health in Haematology on a Global Scale
- Are You a Sickle Warrior
- Exclusive Trust listening to sickle cell patients to drive improvements
- Patient Public Voice Group Bone Marrow Transplant Talk
- Acute pain management in sickle cell disease update national pain group
- Sickle Cell and The Workplace Policy and Procedures Know Your Rights
- Research in Red Cell Disorders Information Talk
- Im the UKs first sickle cell specialist nurse this is how I fought for better care
- Patient Public Voice Group Away Day
- How I find the silver lining while living with sickle cell disease
- Simulation Training
- Education Session Short clips
- National Education Session on Acute Complications in SCD
- National Education Session on Thalassaemia Nursing Focus Group
- New Black Film Collective
- Peer Mentoring Scheme Positions
- Red Cell Condition Support Group
- Education Session Sickle Cell for School Nurses and Teachers
- Education Session on Key Findings from the Fatigue in Sickle Cell Disease
- Building Trust Project
- Red Cell Celebration Day
- Invisible Warrior Design For Sickle Cell at the Great Exhibition Road Festival
- HCC Teaching session Antenatal Screening of Haemoglobinopathies
- Gene Therapy for SCD in Africa and the activities by the Global Gene Therapy Initiative
- Sickle Cell Education Series Episode 3
- Appropriateness in Access to Automated Red Blood Cell Exchange
- Health Improves After Stem Cell Transplant But Challenges Remain
- Two thirds of Londoners who signed up to give blood
- The Cost of Living Crisis
- Transition Workshops
- The Sickle Cell Series
- Hidden condition made me feel like I was on fire Now I feel like I have wings
- HCC Education session Cerebrovascular function in paediatric Sickle Cell patients
- Invisible Warrior at the Imperial Lates Drug Experiments
- Cost of Living Crisis
- Human Centred Design Research
- Preparing for the Holiday Season and End of Year Reflections
- Back to Basics Understanding Anaemia
- How Breakthrough Treatment Has Changed The Lives of Sickle Cell Patients
- Invisible Warrior Workshop How I Reduced My Pain Medication With the Support of My Psychologist
- West London HCC Survey
- Helping Sickle Cell Patients With the Cost of Heating
- Invisible Warrior SCD at the Imperial Lates
- Statement Regarding Blood Shortages in England
- Sickle Cell Society Charity of the Month
- A Proclamation on National Sickle Cell Awareness Month 2022
- Sickle Cell and PhD
- HCC Education Session Paediatric Nursing Sickle Cell in Emergency Departments
- Invisible Warrior Workshop the history of vaccines
- Education session pregnancy in sickle cell
- Insider Magazine article
- UK Heatwave Guidance
- Sickle Cell and Thalassemia APPG holds Annual General Meeting in Parliament
- Sickle cell I want patients to know there is hope
- Did you catch St Georges Hospital colleagues on the news this week
- Story 2
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- Story 21
- Story 22
- Story 23
- Story 24
- Story 26
- Hello sunshine hello summer and hello all things sickle cell
- New on Rare Disease Advisor SCD
- Do you or anyone you live with have Sickle Cell
- Blood transfusions gave me an extra 24 hours with my dying mum now I give blood in her memory
- Can You Tell Its Sickle Cell
- Patient Sickle Cell Awareness Day 2022
- Great Exhibition Road Festival
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Events
- 63rd ASH Annual Meeting and Exposition
- Acute pain management in sickle cell disease update national pain group
- Ageing Well With Sickle Cell Launch Event
- AHSC Event
- Akanji Studio Exhibition Creating beyond Sickle Cell
- Amplify Sickle Cell Voices International
- Animal Workshop
- Awareness Workshops for World Sickle Cell Day
- Break The Stigma Event
- Building Trust Project
- Ciannas Smile Youth Entrepreneur Club
- Dragons Den Workshop
- Give Blood Spread Love
- Global Alliance of Sickle Cell Disease Organizations
- Great Exhibition Road Festival
- Guest panel event on Sickle Cell Awareness featuring Supacell Co Producer
- Haematology Patient and Carers Congress
- HCC Education session Dentistry for Sickle Cell patients
- HCC Education session Ophthalmology and Sickle Cell
- HCC Education session Paediatric Nursing Sickle Cell in Emergency Departments
- HCC Education session Paediatric Nursing Sickle Cell in Emergency Departments
- HCC Education session - Renal Function and Sickle Cell
- HCC Education Session Autologous Gene Therapy Update in Sickle Cell Disease
- HCC Education Session Cardiac failure in Sickle Cell disease
- HCC Education session Cerebrovascular function in paediatric Sickle Cell patients
- HCC Education session Dentistry for Sickle Cell patients
- HCC Education Session Fatigue in Sickle Cell Disease
- HCC Education Session Lab Results and Newborn Screening
- HCC Education Session Sickle Cell for School Nurses and Teachers
- HCC Teaching session Antenatal Screening of Haemoglobinopathies
- Imperial Lates Drug Experiments
- Imperial Lates Romance and Reproduction
- Inaugural Lecture of Professor Paul Telfer
- Invisible Warrior at the Imperial Lates
- Invisible Warrior Design For Sickle Cell at the Great Exhibition Road Festival
- Invisible Warrior SCD at the Imperial Lates Get to know your red blood cells
- Invisible Warrior Workshop
- Invisible Warrior Workshop 1
- Invisible Warrior Workshop 2
- Invisible Warrior Workshop history of vaccines
- Invisible Warrior Workshop How I reduced my pain medication with the support of my psychologist
- KCH Sickle Cell Patient Support
- Managing Nutrition in Sickle Cell Disorder Session Four
- Managing Nutrition in Sickle Cell Disorder Session One
- Managing Nutrition in Sickle Cell Disorder Session Three
- Managing Nutrition in Sickle Cell Disorder Session Two
- MDT April 2025
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- Men Sickle Focus Group
- Milestones Life Journeys with Sickle Cell
- Monthly Parent Talk
- National Education Session Management of Pregnancy in Sickle Cell Disease
- No Ones Listening
- Painting Workshop
- Patient Public Voice Group Session on adult Bone Marrow Transplant
- Patient Public Voice Group 26th sept
- Patient Sickle Awareness Day
- Red Cell Celebration Day
- REDRESS Launch Event
- REDRESS Study Launch Event
- Research in Red Cell Disorders Information Talk
- Research Nurses Workshop
- Sepsis in Thalassaemia
- Shape Survey Global Webinar
- Sickle Cell Public Engagement Event
- Sickle Cell and Thalassaemia Awareness Day
- Sickle Cell and The Workplace Policy and Procedures Know Your Rights
- Sickle Cell Awareness Day at Hammersmith Hospital
- Sickle Cell Disease Appropriateness in Access to Automated Red Blood Cell
- Sickle Cell Disease Research A Day of Learning Art and Empowerment
- Sickle Cell Education Series Emergencies Part 1 Chest Crisis
- Sickle Cell Education Series Episode 3
- Sickle Cell Public Engagement Event
- Sickle Cell The Invisible Disease Online Premiere
- Sickle Warrior Sickle cell and PhD
- SickleFES Games Night
- St Georges Red Cell Celebration Day
- Teaching Session Antenatal Screening of Haemoglobinopathies session 2
- Thalassaemia A nursing Focus
- The Great Exhibition Road Festival
- Transition Workshops
- UCLH Sickle Cell Day
- UKFHD 59th Academic Meeting
- Virtual Holiday for Children and Kids with Sickle Cell
- WEBINAR NEW SICKLE CELL GENE EDITING THERAPY QUESTIONS ANSWERS
- World Sickle Cell Day at Hammersmith Hospital
- An Introduction to Sickle Cell and Thalassaemia in Adults
- An Introduction to Sickle Cell and Thalassaemia in Children
- ASCAT 2022
- Blood Donation
- British Society for Haematology Annual Meeting
- Community Check In
- Sickle Cell Caregiver Summit
- Elements and Advances in Sickle Cell Care
- Education Session
- Family Quiz Night
- HCC Education Session
- HCC Education Session 2
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- HCC Education Session 11
- MDT Jan 2022
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- New Treatments in Development for Sickle Cell
- Red Cell Condition Support Group
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- UK FHD 51st Academic Meeting
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