Tell Us About Your Experience of Applying for PIP (Personal Independence Payment)
We Want to Hear From You
The Sickle Cell Society is running a research project about patients’ experiences with the welfare system. If you have applied for Personal Independence Payment (PIP) because of the impact of sickle cell disorder on your life - or the life of a dependant - we would like to hear from you. We are interested in responses even if the application was unsuccessful, and it does not matter whether the experience was positive, negative or mixed.
Our Research Project
In 2018, the Sickle Cell Society supported a report called ‘How Did You Contract That?’. Its title is a question which someone with sickle cell disorder was asked during an application for PIP, and it reflects the misunderstanding of sickle cell in the welfare system and the disadvantages that people with sickle cell disorder can face in applying.
The Government recently announced that it will review the welfare system – including whether there should be higher thresholds for qualifying for support and cuts to the support available – as part of the Timms Review. As such, we hope to develop a better understanding of sickle cell patients’ experiences with PIP so that we can make the Government aware of the impact that any changes could have.
How to Take Part
If you would be happy to help us with our research, please follow this link and complete the survey by 31st October.
There is no requirement to answer every question. The evidence we receive will form the basis of the Sickle Cell Society’s final report, meaning some evidence will be directly quote
