Medical professional and educator resources
Our resources offer valuable guidance to enhance understanding and improve care for individuals with Sickle Cell Disease (SCD) and related red cell disorders.
Educators, healthcare professionals, and community members can access specialised programs, educational materials, and essential guidelines to foster a more informed and supportive approach. From classroom tools for teachers to critical clinical protocols, each resource reflects our commitment to creating knowledgeable, compassionate environments for those affected by SCD. Explore each section to deepen your knowledge and advance supportive care.
Clinical guidelines and professional resources
West London HCC guidelines
Essential guidelines for the care of Sickle Cell and Thalassaemia patients, hosted by trusted organisations like the Sickle Cell Society and UK Thalassaemia Society
How to refer to the WLHCC MDT
All the information you need on how to refer patients to the HCC MDT, including referral forms and criteria,
Nursing care of acute adult Sickle Cell Crisis
Essential information for nurses and clinicians involved in the management and care of adult patients experiencing a Sickle Cell Crisis.
NICE guidelines
Resources and support to guide healthcare and social work professionals in delivering high-quality, evidence-based care.
Education and awareness
Resources for educators
Information to help teachers have a better understanding of Sickle Cell disease (CSD) and the young people at their schools with this disease.
Can you tell it's Sickle Cell?
This campaign encourages NHS staff to complete the training and urges immediate medical attention if someone displays symptoms of a Sickle Cell crisis, such as pain, fever, or breathlessness.
About red cell disorders
The Sickle Cell Simulation Programme—is a groundbreaking initiative to boost healthcare provider awareness and knowledge on sickle cell care.
Health Inequalities Programme
This programme equips healthcare professionals with the knowledge and resources to work collaboratively, helping to create a fairer, more equitable healthcare system for all.
Guidelines and clinical protocols
West London HCC guidelines
Essential guidelines for the care of Sickle Cell and Thalassaemia patients, hosted by trusted organisations like the Sickle Cell Society and UK Thalassaemia Society
How to refer to the WLHCC MDT
All the information you need on how to refer patients to the HCC MDT, including referral forms and criteria,
Nursing care of acute adult Sickle Cell Crisis
Essential information for nurses and clinicians involved in the management and care of adult patients experiencing a Sickle Cell Crisis.
NICE guidelines
Resources and support to guide healthcare and social work professionals in delivering high-quality, evidence-based care.
Disease-specific management
Management of pregnancy in Sickle Cell disease
This guide is designed to address the unique challenges and considerations that arise during pregnancy for those with Sickle Cell Disease, providing essential advice on managing health and ensuring safe practices throughout this period.
Opthalmology and renal
Explore our insightful Sickle Cell Education Sessions, featuring expert-led talks from leading specialists.
Dentistry for Sickle Cell patients
Watch the video to gain insights into best practices and tailored approaches in dentistry for Sickle Cell patients.
Psychology - Managing adherence to treatment
Effective strategies to support patients in managing the psychological aspects of living with and undergoing treatment for Thalassaemia and Sickle Cell disease.
Cardiac issues in Sickle Cell patients
Effective strategies to support patients in managing the psychological aspects of living with and undergoing treatment for Thalassaemia and Sickle Cell disease.
Research and clinical trials
Clinical trials listing
Find actively recruiting studies and connect with Principal Investigators.
Annual reports
Explore the annual reports from the West London Haemoglobinopathy Coordinating Centre (WLHCC).
Supportive care and social health
Social prescribing in West London
Social Prescribing in London connects individuals to non-clinical services that support well-being, creating a bridge between healthcare and community resources.
Where to go for care Learn more
Feeling unwell? Had an accident?
If you need medical advice or treatment but you’re not sure whether to go to a GP, urgent treatment centre or A&E, click here for guidance.
You can also read more about our emergency services here.
Related news and updates
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Sickle Cell Disease - The Final Frontier!
Even after more than 40 years of raising public awareness of sickle cell disease, extensive education and training of healthcare professionals and the development of specialist services, we’re still witnessing unacceptable standards in nursing…
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Girl, 13, suffered so much pain from disease, she couldn't play sport or go on holiday
Neriya-May Hall has had her life transformed by the use of ultrasound to administer blood transfusions and is now much less likely to experience a sickle cell crisis. A 13-year-old girl who suffered “so much pain” it left her unable to play sport…
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Two thirds of Londoners with sickle cell disease have a Universal Care Plan
Over 5,000 sickle cell patients in London now have a Universal Care Plan (UCP), helping to ensure they get the right care wherever they are in the Capital (16 September 2024). The UCP is an NHS service that digitally shares personalised care plans…