Medical professional and educator resources
Our resources offer valuable guidance to enhance understanding and improve care for individuals with Sickle Cell Disease (SCD) and related red cell disorders.
Educators, healthcare professionals, and community members can access specialised programs, educational materials, and essential guidelines to foster a more informed and supportive approach. From classroom tools for teachers to critical clinical protocols, each resource reflects our commitment to creating knowledgeable, compassionate environments for those affected by SCD. Explore each section to deepen your knowledge and advance supportive care.
Clinical guidelines and professional resources
West London HCC guidelines
Essential guidelines for the care of Sickle Cell and Thalassaemia patients, hosted by trusted organisations like the Sickle Cell Society and UK Thalassaemia Society
How to refer to the WLHCC MDT
All the information you need on how to refer patients to the HCC MDT, including referral forms and criteria,
Nursing care of acute adult Sickle Cell Crisis
Essential information for nurses and clinicians involved in the management and care of adult patients experiencing a Sickle Cell Crisis.
NICE guidelines
Resources and support to guide healthcare and social work professionals in delivering high-quality, evidence-based care.
Education and awareness
Resources for educators
Information to help teachers have a better understanding of Sickle Cell disease (CSD) and the young people at their schools with this disease.
Can you tell it's Sickle Cell?
This campaign encourages NHS staff to complete the training and urges immediate medical attention if someone displays symptoms of a Sickle Cell crisis, such as pain, fever, or breathlessness.
ACT Now Programme
ACT NOW Sickle Cell Acronym and treat a sickle cell crisis fast The NHS is supporting better care for patients across England by encouraging clinicians to ACT NOW whenever a patient attends hospital in a sickle cell crisis.
Health Inequalities Programme
This programme equips healthcare professionals with the knowledge and resources to work collaboratively, helping to create a fairer, more equitable healthcare system for all.
Guidelines and clinical protocols
West London HCC guidelines
Essential guidelines for the care of Sickle Cell and Thalassaemia patients, hosted by trusted organisations like the Sickle Cell Society and UK Thalassaemia Society
How to refer to the WLHCC MDT
All the information you need on how to refer patients to the HCC MDT, including referral forms and criteria,
Nursing care of acute adult Sickle Cell Crisis
Essential information for nurses and clinicians involved in the management and care of adult patients experiencing a Sickle Cell Crisis.
NICE guidelines
Resources and support to guide healthcare and social work professionals in delivering high-quality, evidence-based care.
Disease-specific management
Management of pregnancy in Sickle Cell disease
This guide is designed to address the unique challenges and considerations that arise during pregnancy for those with Sickle Cell Disease, providing essential advice on managing health and ensuring safe practices throughout this period.
Opthalmology and renal
Explore our insightful Sickle Cell Education Sessions, featuring expert-led talks from leading specialists.
Dentistry for Sickle Cell patients
Watch the video to gain insights into best practices and tailored approaches in dentistry for Sickle Cell patients.
Psychology - Managing adherence to treatment
Effective strategies to support patients in managing the psychological aspects of living with and undergoing treatment for Thalassaemia and Sickle Cell disease.
Cardiac issues in Sickle Cell patients
Effective strategies to support patients in managing the psychological aspects of living with and undergoing treatment for Thalassaemia and Sickle Cell disease.
Work Well West London Alliance
The West London Alliance (WLA) is a public sector partnership between seven West London local authorities of Barnet, Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon and Hounslow.
Research and clinical trials
Annual Reports
Explore the annual reports from the West London Haemoglobinopathy Coordinating Centre (WLHCC).
Supportive care and social health
Social Prescribing in West London
Social Prescribing in London connects individuals to non-clinical services that support well-being, creating a bridge between healthcare and community resources.
Work Well West London Alliance
The West London Alliance (WLA) is a public sector partnership between seven West London local authorities of Barnet, Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon and Hounslow.
Where to go for care Learn more
Feeling unwell? Had an accident?
If you need medical advice or treatment but you’re not sure whether to go to a GP, urgent treatment centre or A&E, click here for guidance.
You can also read more about our emergency services here.
Related news and updates
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Read the full storySpecialist Haemoglobinopathies Pharmacists: Advancing Equitable Care for Sickle Cell and Thalassaemia
A powerful new feature in The Pharmaceutical Journal is shining a spotlight on a group of healthcare professionals who are quietly transforming the lives of people living with haemoglobinopathies - inherited blood disorders such as sickle cell…
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Read the full storySickle Cell Disease: What Every Clinician Needs to Think About
Dr Rossby Awadzi is a resident doctor at London North West University Healthcare Trust. Below is a blog he has written for NHS England on Sickle cell disease: what every clinician needs to think about The many faces of a sickle cell crisis A sickle…
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Read the full storyTell Us About Your Experience of Applying for PIP (Personal Independence Payment)
We Want to Hear From You! The Sickle Cell Society is running a research project about patients’ experiences with the welfare system. If you have applied for Personal Independence Payment (PIP) because of the impact of sickle cell disorder on your…
