Events

Webinar | New Sickle Cell Gene Editing Therapy: Questions & Answers

Join us for an insightful ACLT webinar on the CRISPR Gene Editing Technology for people living with Sickle Cell disorder!



Date: Wednesday March 19th, 2025

Time: 18:30 GMT



Learn about the latest advancements in CRISPR technology and how it is revolutionising treatment options for individuals with sickle cell disorder. Our panel of experts will discuss the potential of CRISPR gene editing technology, the criteria to be selected for treatment, the trust and misapprehensions within the community.

An example of this new curative therapy is CASGEVY (or Exa-cel) which is Vertex Pharmaceutical’s brand name for the CRISPR gene-edited therapy, which was recently approved by NICE for some eligible patients (warriors) with Sickle Cell Disorder or transfusion-dependent Beta Thalassemia.



Clinicians and Speakers:

Dr Rachel Kesse-Adu - Consultant haematologist specialising in sickle cell disease.

Dr Steven Okoli - Consultant Haematologist and director of Sickle Cell alliance.

Dr Dale Seviar - Consultant Haematologist at Guy’s and St Thomas Hospital.

Professor Mark Layton - Clinical director of the Northwest London Sickle Cell and thalassaemia network.

Kye Gbangbola – Was the longest serving chair of the Sickle Cell Society.

Anderson Massamba – Sickle Cell warrior and recipient of a Stem Cell transplant.

Olaolu Baikie – Sickle Cell Warrior, previously worked with the NHSBT to raise awareness on sickle cell and blood donation.

Hayley King - Founder of Cianna's Smile Charity, supporting families impacted by Sickle Cell.



Don't miss out on this informative and interactive online event where you will be able to raise questions or any concerns on this subject matter.

Register now to secure your spot!