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Read the full storyTackling the Enemy of Cold Weather with Sickle Cell Disease
As winter approaches, I make several adjustments to avoid a crisis On Sunday, Oct. 29, daylight saving time ended here in the U.K., meaning we set our clocks back one hour. In the week leading up to…
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Read the full storyCoping with Parental Guilt in Sickle Cell Disease Management
Having a child with sickle cell disease can prompt many emotions for parents Having a child with sickle cell disease can prompt many emotions for parents, particularly guilt. In this column, I’ll…
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Read the full storyRead 2023 Sickle Cell Nursing Care Report - The Between Life and Death
An investigation into specialist sickle cell nursing workforce shortages Following on from the care failures highlighted in our 2021 report, ‘No One’s Listening’, we have taken a deeper look at…
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Read the full storyPrescription Savings Campaign
This campaign aims to raise awareness of the two prescription money saving schemes available to patients: the Prescription Prepayment Certificate and the Low Income Scheme. The campaign is targeted…
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Read the full storyUK Medicines Regulator Approves World-first Gene-editing Treatment for Blood Disorders
Prof. Mark Layton from Clinical lead of the West London HCC: “The Medicines and Healthcare products Regulatory Agency (MHRA) approved the first gene editing treatment called Exa-cel for a clinical…
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Read the full storyAre You a Sickle Warrior?
Are you a Sickle Warrior? The New Black Film Collective have now launched their Sickle Cell Warriors program. They are looking for Sickle Cell Warriors between the age of 15-18 to join. If…
