News and Updates
News and Updates
Showing 25-30 of 73 results
-
Read the full storyPatients with blood disorders to get world-first NHS test
Sickle cell patient gets world-first NHS test A patient with sickle cell disorder says she is optimistic for the future after a new genetic test was launched. Stephanie George, 32, from London, was…
-
Read the full storyStandards of the Clinical Care of the treatment of Children and Adults living with Thalassaemia in the UK
We are thrilled to announce the online publication of the much-anticipated "4th Edition of the Standards of the Clinical Care of the treatment of Children and Adults living with Thalassaemia in the…
-
Read the full storyTackling the Enemy of Cold Weather with Sickle Cell Disease
As winter approaches, I make several adjustments to avoid a crisis On Sunday, Oct. 29, daylight saving time ended here in the U.K., meaning we set our clocks back one hour. In the week leading up to…
-
Read the full storyRead 2023 Sickle Cell Nursing Care Report - The Between Life and Death
An investigation into specialist sickle cell nursing workforce shortages Following on from the care failures highlighted in our 2021 report, ‘No One’s Listening’, we have taken a deeper look at…
-
Read the full storyPrescription Savings Campaign
This campaign aims to raise awareness of the two prescription money saving schemes available to patients: the Prescription Prepayment Certificate and the Low Income Scheme. The campaign is targeted…
-
Read the full storyUK Medicines Regulator Approves World-first Gene-editing Treatment for Blood Disorders
Prof. Mark Layton from Clinical lead of the West London HCC: “The Medicines and Healthcare products Regulatory Agency (MHRA) approved the first gene editing treatment called Exa-cel for a clinical…
