Patient advocacy in healthcare settings is a top priority for us here at SC101. While we appreciate and acknowledge all healthcare providers, there are still some things they get wrong when it comes to those with sickle cell disease. We put together a brief video of discussing what tends to go wrong in this video.
The National Institute for Health and Care Excellence (NICE) announced their draft decision to reject the CRISPR gene therapy, Exa-cel, as a treatment for sickle cell disorder. Exa-cel, also known as brand name Casgevy, involves modifying a…
The prevalence of sickle cell disease is changing how Nigerians date, marry and plan their lives. And as genetic testing becomes more common, prospective parents across the world will face similar questions by Krithika Varagur Subomi Mabogunje…
Calling young people with sickle cell & parents! Are you transitioning from paediatric to adult services? Share your experiences with us in London next week! Email communications@sicklecellsociety.org for details. Your voice matters!
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