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The Dragons Den Product Design and Pitch workshop is a great way to get young people to think entrepreneurial and try their hand at pitching. Sign up here: https://forms.gle/jmFunhECKiQ9Yrjs7
A London woman from Walthamstow was inspired to give blood after she was able to say goodbye to her mother thanks to blood transfusions. Vanessa Davis, 24, had seen her mum's health start to…
NHS England and NHS Improvement has launched a new Sickle Cell awareness campaign ahead of World Sickle Cell Day 2022. The campaign, which is part of a bigger drive to improve sickle cell care…
Jimi Olaghere thought he would have to wait decades to be freed from his sickle cell disease - but now scientists have engineered his blood to overcome the disease which left him in constant pain.
Sickle Cell Awareness & Patient Education Day 2022 Jul 13 @ 09:45 – 16:30 We are happy to announce our next Sickle Cell Awareness & Patient Education Day for 2022 which will be for all patients,…
Join us for a weekend of free events for all ages in South Kensington to celebrate trailblazing ideas in science and the arts. About this event Explore the extraordinary This summer, explore the…
Why are there more female Sickle Cell Disease advocates? Join the discussion at our next workshop on Monday 25th April; 7pm BST. Signup via invisiblewarrior.scd@imperial.ac.uk
My name is Laurel Brumant- Palmer I am 58 years old, I was diagnosed with Sickle Cell Disease SS at the age of 3 years old. I am a Sickle Cell survivor. Living with sickle cell disease has been…
Join our next event where Dr Norris Igbineweka will tell us all about Current and Future Sickle Cell Disease Treatments. Sign up for this exciting digital workshop and hear what the future will…
Invisible Warrior is organising our next #SickleCell workshop on 8th February 7:30-9:00pm! This month the topic is "How can we improve the relationship between patients and medical professionals?"…
Happy New Year! It’s 2022, and my New Year’s resolution is the same as always: to experience and maintain good health. I’m not completely naive. I’m acutely aware of how sickle cell disease works,…
An inquiry into the avoidable deaths and failures of care for sickle cell patients in secondary care. Join us to hear from our parliamentary and policy officer for Sickle Cell and Thalassaemia All…
Happy New Year to everyone! For our January support group session we will be thinking together about hopes & intentions for this new year. What’s important to you to do more of in 2022? Let’s share…
After the government rejected calls for such a move, community initiatives can’t continue to be the only answer to survivors’ persisting inequalities A few weeks ago, during a landmark “Treatment of…
Alidor Gaspar says he wanted to make sure Sickle Cell wouldn't continue in his family, WHEN ALIDOR Gaspar was diagnosed with sickle cell disease as a young child, he couldn’t have predicted how the…
A new Covid drug designed to reduce the risk of vulnerable patients needing hospital treatment will be available on the NHS from today. Sotrovimab is a monoclonal antibody given as a transfusion to…
BIRMINGHAM, Ala. (WBRC) - New hope for those living with sickle cell disease. Research from UAB shows a new gene therapy could one day be the cure for sickle cell disease. Dr. Julie Kanter explained…
A health minister has confirmed there are no plans for sickle cell patients to receive free NHS treatment during a landmark parliamentary debate. Maria Caulfield was quizzed at the ‘Treatment of…
There is currently not much known about the relationship between pregnancy outcomes and sickle cell trait. New research indicates an increased risk of stillbirth for delivering mothers who have the…
We aim to provide members with both general and haematology specific up-to-date COVID-19 information. This advice is for healthcare professionals. Patients looking for further information on their…
This year marks the second joint conference with the European Hematology Association (EHA) and the British Society of Haematology (BSH) and nevertheless, with the challenges posed by COVID -19 we…
So, this year has been an incredible year full of happiness, blessings and new ventures. It has also been a year of loss, sadness and broken relationships. In March I became grandmother to identical…
On 8 December, Pat McFadden MP is leading a Westminster Hall debate on the treatment of sickle cell. To inform his debate, he wants to hear about your experiences. The deadline for submissions is…
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The Invisible Warrior project is designed to increase the understanding of sickle cell disease. Next to increasing awareness around what is the disease and who can get it, our project also focuses…
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The NHS Race and Health Observatory is pleased to announce the new appointment of a medical advisor to explore sickle cell inequalities in NHS healthcare delivery. Dr Carl Reynolds, a consultant…
Help improve the sickle cell screening programme by joining our online focus group and receive a gift voucher as a thank you. We are looking for people who have sickle cell or trait and have not yet…
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Red Cell Pain Management and Psychology Service, based at St George's Hospital in Tooting, London, for people living with sickle cell disease and thalassaemia Here are the dates & topics for our…
Thanks to the vaccine, a case of Covid is much less likely to land you in hospital. But soaring infections - which are outstripping some European nations - are still proving a cause for…
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Painful episodes The drug, crizanlizumab, made by Novartis, is injected into a vein and can be taken on its own or alongside standard treatment and regular blood transfusions. And in a trial,…
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The JCVI has reviewed the evidence on vaccinating children aged 12 to 15 who do not have underlying health conditions that put them at increased risk from severe COVID-19. The assessment by the…
Nature have produced a range of interesting articles about sickle cell, gene editing, new-born screening and more. Read them all here: Link A condition that affects many people of African descent…
The above is the title of my book that was published in May 2021. I have been blogging and writing about sickle cell for over 6 years. My name is Tola Dehinde. I was diagnosed as having sickle cell…
Prescription Charge Petition Add Sickle Cell to the Prescription Charge Exemption List Anusjka Regis-Etumnu has set up a petition to add sickle cell disorder to the prescription charge exemption list.
The guidance has been updated in light of the move to a Tier 4 lockdown for much of the UK population resulting from the recent rise in COVID-19 cases and admissions.
CSL889 A clinical research study in adult people with sickle cell disease. A Phase 1, Multi-Center, Open Label, Single Ascending Dose Study to Evaluate the Safety, Tolerability, and Pharmacokinetics…
Over half of UK adults havehad the jab thanks to the dedication of NHS workers but some are still hesitant– so our experts are here to help clear up those Covid injection concerns. We've spoken…
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