News and Updates
News and Updates
Showing 1-8 of 8 results
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Read the full storyTell Us About Your Experience of Applying for PIP (Personal Independence Payment)
We Want to Hear From You! The Sickle Cell Society is running a research project about patients’ experiences with the welfare system. If you have applied for Personal Independence Payment (PIP)…
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Read the full storyChildren's Academic and Health Results for Sickle Cell Disease in England (CARES)
We aim to investigate the health outcomes, health service utilisation, and educational outcomes of all children with Sickle Cell Disease in England. Sickle cell disease (SCD) is one of the most…
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Read the full storyDo You Have Sickle Cell and Have Regular Pain Crisis or Blood Transfusions
REDRESS is a clinical research study investigating the use of stem cell transplant (also called bone marrow transplant) from half-matched family donors to treat people with severe sickle cell…
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Read the full story'What's the worst that could happen?': Love in the sickle cell capital of the world
The prevalence of sickle cell disease is changing how Nigerians date, marry and plan their lives. And as genetic testing becomes more common, prospective parents across the world will face similar…
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Read the full storyAre You Moving Up to Adult Sickle Care
Calling young people with sickle cell & parents! Are you transitioning from paediatric to adult services? Share your experiences with us in London next week! Email communications@sicklecellsociety.
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Read the full storyNew on Rare Disease Advisor SCD: Patients With SCD Report Improved Overall Health After Voxelotor Treatment
Patients With SCD Report Improved Overall Health After Voxelotor Treatment Voxelotor treatment may have a positive impact on the way patients with sickle cell disease (SCD) perceive their…
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Read the full storyBlood transfusions gave me an extra 24 hours with my dying mum - now I give blood in her memory
A London woman from Walthamstow was inspired to give blood after she was able to say goodbye to her mother thanks to blood transfusions. Vanessa Davis, 24, had seen her mum's health start to…
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Read the full storyUpdated guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19
The guidance has been updated in light of the move to a Tier 4 lockdown for much of the UK population resulting from the recent rise in COVID-19 cases and admissions.
