News and Updates
News and Updates
Showing 1-6 of 73 results
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Read the full storyBecome a Member of The Red Cell Patient Thalassaemia Public Voice Group
Join Our Patient & Public Voice Group – Help Shape the Future of Care for Rare Inherited Anaemias We’re inviting patients, carers, and family members affected by Rare Inherited Anaemias (RIA) to…
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Read the full storyWorld Sickle Cell Day 2025 Marked with Excellent events across the West London HCC
The Sickle Cell community came together in strength and spirit across the West London HCC on Thursday, 19 June, marking World Sickle Cell Day 2025 with a powerful series of events that celebrated…
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Read the full storyUnderstanding the key features of sickle cell disease and beta thalassaemia
Sickle cell disease (SCD) and beta thalassaemia belong to a group of inherited conditions known as haemoglobinopathies, where the haemoglobin in red blood cells (RBCs) is affected by a genetic…
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Read the full storyTHE NHS NEEDS ONE MILLION BLOOD DONORS TO SAVE LIVES
Help Fight Sickle Cell – Donate Blood, Give Life Right now in the UK, thousands of people are living with sickle cell disorder, the fastest-growing genetic condition in the country. It mainly…
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Read the full storyGenomics England drives Sickle Cell research through the Diverse Data Initiative
In black communities, more research is needed to improve our understanding of health conditions and to develop better treatments. The IBHO BioResource is a collaboration between NIHR BioResource,…
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Read the full storyRevolutionary gene-editing therapy for sickle cell offers hope of a cure for NHS patients
NHS patients with sickle cell disease will soon have access to a revolutionary gene-editing treatment, offering new hope for a cure. The one-off gene therapy, known as exagamglogene autotemcel (or…
