News and Updates
News and Updates
Showing 73-78 of 182 results
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Read the full storyNHS rolls out ‘life-changing’ treatment for thousands with sickle cell disease
Thousands of patients with sickle cell disorder are to be offered a new “life-changing” treatment on the NHS from today (3 May), following the approval and roll-out of a new drug that could…
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Read the full storyCommunity Coffee Morning pilot across 5 boroughs in SW London
Haemoglobinopathy - 2-year Community Pilot across 5 boroughs in SW London Central London Community Healthcare Trust haemoglobinopathy team have be funded to expand their service. This is a London…
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Read the full storyAkanji, The Studio Creatively Raising Awareness On Sickle Cell Through Beautiful AI Art
An exhibition featuring works, films and performances from artists living with Sickle Cell. Time & Location 03 May 2024, 18:00 – 05 May 2024, 18:00 Opening Event Saturday 10AM-18:00 Public…
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Read the full storySickle Cell Family Retreat 2024
From 30th August to 1st September 2024, a group of around 30 families who have at least one child aged 6-15 years old with sickle cell will come together at Whitemoor Lakes in Staffordshire (30 mins…
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Read the full storyExa-Cel (Casgevy) Gene Therapy Update
The National Institute for Health and Care Excellence (NICE) announced their draft decision to reject the CRISPR gene therapy, Exa-cel, as a treatment for sickle cell disorder. Exa-cel, also known…
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Read the full story'What's the worst that could happen?': Love in the sickle cell capital of the world
The prevalence of sickle cell disease is changing how Nigerians date, marry and plan their lives. And as genetic testing becomes more common, prospective parents across the world will face similar…
