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Tackling the Enemy of Cold Weather with Sickle Cell Disease
As winter approaches, I make several adjustments to avoid a crisis On Sunday, Oct. 29, daylight saving time ended here in the U.K., meaning we set our clocks back one hour. In the week leading up to…
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Read 2023 Sickle Cell Nursing Care Report - The Between Life and Death
An investigation into specialist sickle cell nursing workforce shortages Following on from the care failures highlighted in our 2021 report, ‘No One’s Listening’, we have taken a deeper look at…
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Prescription Savings Campaign
This campaign aims to raise awareness of the two prescription money saving schemes available to patients: the Prescription Prepayment Certificate and the Low Income Scheme. The campaign is targeted…
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UK Medicines Regulator Approves World-first Gene-editing Treatment for Blood Disorders
Prof. Mark Layton from Clinical lead of the West London HCC: “The Medicines and Healthcare products Regulatory Agency (MHRA) approved the first gene editing treatment called Exa-cel for a clinical…
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Science to Health in Haematology on a Global Scale
Haematology, the study of blood and blood disorders, underpins health. Tanzania and UK have established experience and expertise in this field at institutional and national level, and have been at…
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Exclusive: Trust listening to sickle cell patients to drive improvements
The chief executive of a trust, which made headlines when a patient died due to a lack of staff training in sickle cell disease, has made significant changes and wants to further raise the…