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How I'm Prioritizing My Health in The New Year
Happy New Year! It’s 2022, and my New Year’s resolution is the same as always: to experience and maintain good health. I’m not completely naive. I’m acutely aware of how sickle cell disease works,…
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No One's Listening Report Explained
An inquiry into the avoidable deaths and failures of care for sickle cell patients in secondary care. Join us to hear from our parliamentary and policy officer for Sickle Cell and Thalassaemia All…
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Red Cell Condition Support Group - Hopes and Intentions for the New Year
Happy New Year to everyone! For our January support group session we will be thinking together about hopes & intentions for this new year. What’s important to you to do more of in 2022? Let’s share…
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"Sickle Cell patients already face medical biases. The least they deserve is free prescriptions"
After the government rejected calls for such a move, community initiatives can’t continue to be the only answer to survivors’ persisting inequalities A few weeks ago, during a landmark “Treatment of…
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Dating with Sickle Cell Remains a Taboo
Alidor Gaspar says he wanted to make sure Sickle Cell wouldn't continue in his family, WHEN ALIDOR Gaspar was diagnosed with sickle cell disease as a young child, he couldn’t have predicted how the…
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Covid: Vulnerable NHS patients to be offered new drug
A new Covid drug designed to reduce the risk of vulnerable patients needing hospital treatment will be available on the NHS from today. Sotrovimab is a monoclonal antibody given as a transfusion to…