News and Updates
News and Updates
Showing 1-43 of 43 results
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Read the full storyWLHCC PPV Group Publishes 'Milestones' Report
The Patient and Public Voice (PPV) Group for the West London Haemoglobinopathies Coordinating Centre has released its Milestones report, following the inspiring event held in August 2025. The…
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Read the full storyLiving Well with Sickle Cell: Engagement Education and Empowerment
You are invited to the Living Well with Sickle Cell community event to explore everyday wellness for individuals and families affected by sickle cell. This event is an opportunity to learn more…
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Read the full storySickle The Docufilm: Wimbledon Odeon 23.10.25
Book your FREE tickets here! SICKLE is a powerful and insightful docufilm that delves into the history and impact of sickle cell disorder. This event, presented by The Red Cell Network in…
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Read the full storyIt Takes a Village Blood Drive
Presenter and Comedian Sayo launches 'It Takes a Village', a 12 month campaign to recruit 16,000 new blood donors from black heritage backgrounds to support the Sickle Cell Community The first of…
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Read the full storyInvisible Warrior: Wishes for Warriors
Invisible Warrior is hosting an in-person workshop: Wishes for Warriors. Wishes for Warriors combines raising awareness for Sickle Cell with designing creative materials to support Sickle Cell…
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Read the full story2nd Annual Advancing Sickle Cell Nutrition Conference
Are you a health or medical professional working with clients living with Sickle Cell Disorder? Do you want to enhance your knowledge about nutritional management in Sickle Cell Disorder? This…
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Read the full storyThalassaemia Family Day
Join Royal College of Physicians on Saturday 4th October for their Thalassaemia Family Day full of activities, panel sessions, games, food and more. Scan the QR code on the flyer for more…
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Read the full storySickle Cell Awareness Month Launch Exhibition
In recognition of Sickle Cell Awareness Month, Akanji Studio is proud to launch a powerful new exhibition on Wednesday, 3rd September 2025, from 7–11 PM at Boxpark Shoreditch. This free event…
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Read the full storyBecome a Member of The Red Cell Patient Thalassaemia Public Voice Group
Join Our Patient & Public Voice Group – Help Shape the Future of Care for Rare Inherited Anaemias We’re inviting patients, carers, and family members affected by Rare Inherited Anaemias (RIA) to…
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Read the full storyWorld Sickle Cell Day 2025 Marked with Excellent events across the West London HCC
The Sickle Cell community came together in strength and spirit across the West London HCC on Thursday, 19 June, marking World Sickle Cell Day 2025 with a powerful series of events that celebrated…
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Read the full storyLEVEL UP! - Youth Co-Creation Day
Join us for LEVEL UP! A dynamic youth-focused event hosted by Sickle Cell Society in collaboration with the NHS Race and Health Observatory. This one-day gathering is designed for young people aged…
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Read the full storyTransforming Care and Strengthening Communities
Amid the vibrant energy of West London, World Sickle Cell Day brought together diverse communities in a powerful show of solidarity, education, and celebration. The day highlighted the resilience of…
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Read the full story
World Sickle Cell Day at Hammersmith Hospital
Join us at Hammersmith Hospital to celebrate World Sickle Cell Day with the Sickle Cell Alliance & WLHCC! World Sickle Cell Day at Hammersmith Hospital- Sickle Cell Alliance & WLHCC Come join us…
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Read the full storyGuest panel event on Sickle Cell Awareness featuring Supacell Co Producer
You are invited to our Sickle Cell Awareness panel event in collaboration with the NHS with an incredible guest panel featuring Sheila Nortley, the Co-Producer of 'Supacell' on Netflix. Book your…
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Read the full storyThe Invisible Warrior project will be back at the Great Exhibition Road Festival!
We are very excited that the Invisible Warrior project will be back at the Great Exhibition Road Festival! The festival is a weekend of free art and science events for all ages. What: we have…
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Read the full storySickle Cell and Thalassaemia Awareness Day
Join The Central London Community Healthcare NHS Trust for their Sickle Cell and Thalassaemia Awareness Day on June 19th Come along and enjoy some food and refreshments and some activities for kids…
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Read the full storyUKFHD 59th Academic Meeting - Wednesday 7th May 2025 - Hybrid Event - Registration Now Open
UKFHD 59th Academic Meeting Registrations are now open for the UKFHD 59th Academic Meeting which is being held on Wednesday 7th May 2025. This will be held as a hybrid event from the Cavendish…
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Read the full storySickle Cell Disease Research: A Day of Learning, Art, and Empowerment
We invite you to a special and interactive event dedicated to people living with sickle cell disease (SCD), their families, and carers. This day is all about learning, connecting, and exploring how…
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Read the full storyImproving Black Health Outcomes Education Events
Join us at Hammersmith Hospital for a series of exciting and interactive patient engagement events! Whether you're a patient, family member, or carer, this is your chance to dive into the world of…
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Read the full storyWest London HCC Training Day
On Wednesday the 15th of January the HCC (Sickle Cell Network) is delivering a free training day at the Royal College of Physicians, Please register via the link below: Office Forms Link to…
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Read the full storySickle Cell and Genomics Research Aims
Join Sickle Cell Society on July 30th for an online Sickle Cell & Genomics Workshop for under 30's! Learn about genomics, their impact on health, and share your views on future research priorities.
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Read the full storySickle Cell Awareness Day at Hammersmith Hospital
Imperial College Healthcare NHS Trust will be holding an event to raise awareness on Sickle Cell Disease. We hope the event can help contribute to reducing stigma and drive meaningful change for the…
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Read the full storySickle Cell and Genomics Workshop
Sickle Cell Society are hosting workshops to gather insights from those with sickle cell, carriers, and carers to shape future research in sickle cell and genomics. Join in July & August, online or…
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Read the full storyCommunity Coffee Morning pilot across 5 boroughs in SW London
Haemoglobinopathy - 2-year Community Pilot across 5 boroughs in SW London Central London Community Healthcare Trust haemoglobinopathy team have be funded to expand their service. This is a London…
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Read the full storyAkanji, The Studio Creatively Raising Awareness On Sickle Cell Through Beautiful AI Art
An exhibition featuring works, films and performances from artists living with Sickle Cell. Time & Location 03 May 2024, 18:00 – 05 May 2024, 18:00 Opening Event Saturday 10AM-18:00 Public…
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Read the full storySickle Cell Family Retreat 2024
From 30th August to 1st September 2024, a group of around 30 families who have at least one child aged 6-15 years old with sickle cell will come together at Whitemoor Lakes in Staffordshire (30 mins…
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Read the full storyCome Save Lives With Us
NHS Blood and Transplant Presents a Community Fun Day For All The Family!! We are working hard to increase the number of people giving blood and we urgently need your help. There is a significant…
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Read the full storyImperial Lates Romance & Reproduction - The Inheritance of Sickle Cell
Grab your gals, pals, a mate or even a date and head to the next Imperial Lates! In this Valentine’s Day and LGBT+ History Month special, science gets sexy as we delve into attraction, intimacy and…
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Read the full storyPatient Voices for Social Prescribing
A new London-based patient voices programme for people with lived experience of social prescribing. Social prescribing has huge impacts on patients’ lives, through providing access to support for…
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Read the full storyRed Cell Condition Support Group
Join Red Cell Pain Management on Monday 31st July, 1-2:15pm for their event on adjusting to going from hospital to home. This event will be held via teams, for more information please email here
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Read the full storyBuilding Trust Project
Building Trust project Learning from Covid by building trust Background The Covid-19 pandemic both increased health inequality and shone a spotlight on it. It revealed that black and Asian…
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Read the full storyRed Cell Celebration Day
Join Red Cell Pain Management on Monday 19th June, 3-6pm for their Red Cell Celebration Day for people with sickle cell and thalassaemia and also staff members from St Georges Trust. There will be…
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Read the full storyInvisible Warrior & Design For Sickle Cell at the Great Exhibition Road Festival
Join Invisible Warrior & Design For Sickle Cell at the Great Exhibition Road Festival! Talk to scientists to learn about blood, blood cells, and blood diseases. Meet a patient living with Sickle…
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Read the full storyAppropriateness in Access to Automated Red Blood Cell Exchange: Discussion forum for patients and clinicians to help improve access to care.
The Sickle Cell Society and the Haemoglobinopathy Coordination Centres (HCC’s) have recently distributed a survey to sickle cell patients to ask for views on the provision of Automated Red Blood…
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Read the full storyTransition Workshops
Please join us for the Transition Workshops event held by Sickle Cell Society. This event will occur every week starting Saturday 25th February until Friday 31st March for ages 13-19 led by…
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Read the full storyInvisible Warrior at the Imperial Lates - Drug Experiments
We are excited to announce that the Invisible Warrior team will be back at another Imperial Lates event! When: Thursday 9th February, 6-9 pm GMT. What: Interactive stand on sickle cell disease and…
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Read the full storyHuman-Centred Design: How Can We Use Design-Thinking to Investigate The Impact of Sickle Cell
Human-centred design: How can we use design-thinking to investigate the impact of Sickle Cell You are invited to participate in this research project which seeks to visually represent the impact of…
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Read the full storyInvisible Warrior SCD at the Imperial Lates Get to know your red blood cells
Please join Invisible Warrior at Imperial Lates: Tiny Science – Get to know your red blood cells We are joining the first Imperial Lates of this academic year: Tiny Science. We will host an…
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Read the full storySickle Cell and PhD
Experiencing Chronic Pain While Being a Scientist.... Join us for our next workshop "Sickle Cell and PhD: Experiencing chronic pain while being a scientis". We are joined by Dr Michael Olanipekun…
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Read the full storyInvisible Warrior Workshop the history of vaccines
What is a vaccine and how have they changed overtime? What are the benefits of taking a vaccine for an individual and for the whole population? Join the Invisible Warrior Workshop on Monday 26th…
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Read the full storyDo you or anyone you live with have Sickle Cell
The Dragons Den Product Design and Pitch workshop is a great way to get young people to think entrepreneurial and try their hand at pitching. Sign up here: https://forms.gle/jmFunhECKiQ9Yrjs7
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Read the full storyPatient Sickle Cell Awareness Day 2022
Sickle Cell Awareness & Patient Education Day 2022 Jul 13 @ 09:45 – 16:30 We are happy to announce our next Sickle Cell Awareness & Patient Education Day for 2022 which will be for all patients,…
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Read the full storyWhat does it mean to advocate for Sickle Cell Disease?
Why are there more female Sickle Cell Disease advocates? Join the discussion at our next workshop on Monday 25th April; 7pm BST. Signup via invisiblewarrior.scd@imperial.ac.uk
